A guide to navigate your brain cancer diagnosis

This resource is designed to assist patients diagnosed with brain cancer to keep track of appointments, medications and important questions to ask.


Our mission is to ensure that no one goes through their brain cancer journey alone.

At The Survivorship Diary, we understand the importance of having reliable resources and  guidance throughout your brain cancer journey. We have consulted with various organisations to compile a list of patient resources, so you can find the help and support you need.

Mark Hughes Patient Packs
The patient pack provided by the Mark Hughes Foundation serves as a source of hope and support for patients and their families who are coping with brain cancer.
It is comprised of a patient diary, along with other useful items and information that can prove helpful during a challenging time.
Anxiety & Depression
The Brain Tumour Charity has created a fact sheet that can aid patients in identifying the symptoms of depression and suggest some coping mechanisms to tackle these difficulties.
Seizure & Neurological Health
Many organisations, including the Epilepsy Foundation, are dedicated to increasing awareness and providing assistance to individuals impacted by seizures. We hope that this information will be helpful to you if you are personally dealing with seizures or caring for someone who is.
Caring For The Carer
It can be difficult to remain strong and supportive of a loved one who is going through brain cancer, and asking for help can be even harder. That's why the Mark Hughes Foundation has provided funding for the CareWell program, which aims to offer supportive cancer care.
Palliative Care
Palliative Care Australia serves as the primary organisation for palliative care in the country. Their website provides valuable information for patients and caregivers.
Brain Tumour Alliance Australia
If you are in search of support groups for brain cancer within Australia, the BTAA is dedicated to representing the interests and concerns of brain tumour patients, their families, and caregivers.
Learning To Live With Brain Cancer
The Oliva Newton-John Cancer Wellness & Research Centre and Austin Health have collaborated to create "Building the Bridge to Life with Brain Cancer," a guide that helps patients and caregivers navigate the challenges of living with brain cancer.